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  Links to other web sites:

  Sites of professional bodies:

 

Papworth Hospital    (NHS Foundation Trust)

  t 

A particularly good site with details of how to be referred to their sleep clinic and a detail section 

on Restless Legs Syndrome


  A professional group working closely with the Ekbom Support Group

 

In particular we suggest you read and watch the slide show at the RLS teaching kit link. 


RLS Foundation (USA) 


   National Institute of Neurological Disorders and Stroke (USA)


WE MOVE  Worldwide  Education and Awareness for Movement Disorders (USA)


  British Sleep Society


  saas  the sleep specialists (Sleep Assessment and Advisory Service)


         Our  discussion forum on Topica


Other Support Groups:

 

   Dutch Restless Legs Foundation (in Dutch but with English Links page)


   Southern California RLS Support Group  (This is a particularly useful site, lots of good reading  - note they have changed their URL if you book marked the old one.  Their medical responses to patient's letters is probably unique in the field of RLS and is very useful to peruse).


   Granite State Restless Legs Syndrome Support Group



  International:

 

  Australia


  International Restless Legs Syndrome Study Group (Particularly have a look at the What's New Section here as amongst the detail of the travel awardees there is quite a lot of detail about the work that is being undertaken) 


Other sites:

   NHS Direct On Line Health Encyclopaedia:  Restless legs syndrome


Bandolier - a particularly comprehensive web site from an independent source - highly recommended.


    useful site with useful links. Try a search for Ekbom.


  RLS Diagnostics (home assessment and information pack)   Note: this link has not worked on all occasions it has been checked


   WebMD  article


   Yahoo Restless Legs Mailing List  (Cyber Space Support group)


    Sleep Disorders


    An individual view (Jill Gunzel's)  RLS rebel is a famous set of pages.  A must read for Ekbom Syndrome sufferers who want to use self help techniques to alleviate their suffering.  (May not be working)


    Who named it? (Ekbom Syndrome)


UK SELF HELP  UK Self help site trying to pass their 1,000,000th visitor to the site.


 Oyster Healthcare Communications (Oyster is a specialist medical publisher producing quarterly magazines and medical journals in key medical specialities for secondary and primary care teams, in both printed and electronic format).


 

Synapse is a new neurology magazine from Oyster for those working in primary care. It features news on the latest medical advances and policy developments, information on best practice initiatives, and conference reports as well as expertise from secondary care.  Dr. Colin-Thomé: GPs the lynch pin in shared care - click for press release details


  RemedyFind is a free, unbiased site (not sponsored by drug companies   etc.) where individuals can rate the effectiveness of the Restless Legs Syndrome treatments they have tried.  The page for tried remedies for restless legs is here where they are reviewed and rated

 


A particularly informative Guideline is available from this site on restless legs but be prepared to register or pay or justify yourself for the guideline. The main eguideline to our medical condition can be downloaded here.

 


A site at which there are quite a few alternative pages to view and read

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